Hydrocephalus Canada is a national organization empowering people impacted by hydrocephalus and spina bifida to experience their best life by bridging advocacy, research and innovation with awareness, education and support. Our organization is celebrating 48 years of service in 2021.

Our core purpose is to deliver information and support services that enhance the lives of those living with or at risk of developing hydrocephalus and/or spina bifida. We initiate, facilitate and collaborate on awareness, education, support and research initiatives to help those impacted by the conditions thrive.

Hydrocephalus Canada is leading the efforts to:

• develop a Canadian hydrocephalus strategy
• increase awareness about hydrocephalus and spina bifida
• create solutions to support prevention, access to effective and appropriate treatment, advancement of new treatments, early, accurate diagnosis and optimal outcomes
• establish supportive communities across Canada that encourage inclusive, proactive conversations and activities
• offer educational resources and support tools for those with the conditions, caregivers and health care providers
• fund meaningful, impactful research